Hopefully there will be a future UNOS open comment session.
The UNOS Summer 2020 Public Comment Session concluded on Oct. PSC Partners prepared it so that the PSC community might understand the liver allocation system and how it works advocate for a system that fairly prioritizes PSC without creating inequities for other liver disease patients and be able to clearly articulate concerns during the UNOS public comment sessions. The United Network for Organ Sharing (UNOS) schedules public comment sessions to hear concerns and other feedback, and this toolkit may be helpful if one plans to comment. system of organ allocation or have concerns about how PSCers fare. PSC patients and caregivers may want to learn more about the current U.S. Add your voice today! Visit this page on our website for more information.Įducational Toolkit for the PSC Community: Communicating Transplant Concerns to UNOS Every comment by PSC patients and caregivers is important. PSC Partners supports the proposed UNOS policy change.
We have a unique opportunity to make our voices heard and to bring about an important change. URGENTLY CALLING FOR YOUR COMMENTS ON UNOS PROPOSAL FOR PSC EXCEPTION POINTS IN MELD SCORE! Deadline: March 23, 2021 All transplant centers must abide by UNOS rules to remain certified to perform transplants. UNOS divides the country into 11 distinct organ sharing regions as shown on this map. UNOS rules determine when and to whom organs are allocated. In the United States, the United Network for Organ Sharing (UNOS) is the national organization that sets policy and enforces the rules for organ allocation. Voice of the Patient Report: PFDD Forum.
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